ON THE MOVE WITH HAEMOPHILIA - 2018
An education resource for parents, teachers and coaches on sport and exercise in young people with haemophilia. Includes information on rehabilitation after a bleed and participation in school activities.
Developed by InVIVO Academy in collaboration with HFA and Haemophilia Foundation of New Zealand
On the Move with Haemophilia interactive videos
Download On the Move with Haemophilia toolkit PDF 1.8MB
On the Move with Haemophilia was supported by Pfizer's Independent Grants for Learning & Change through an independent medical education grant.
Beyond Prophylaxis Project: understanding and addressing the unmet needs of young people with bleeding disorders - July 2012
A report on the HFA youth needs assessment, which describes the results of consultation with young people with bleeding disorders or who carry the gene, siblings, parents and haemophilia health professionals. The report outlines issues raised about the needs of young people affected by bleeding disorders and gives recommendations for a response.
Download PDF 1MB
Youth News Newsletter