TELLING OTHERS ABOUT BLEEDING DISORDERS: INFORMATION FOR WOMEN, GIRLS AND THEIR PARENTS
Information to help with considering some of the issues about telling others (disclosure). It looks at some of the situations where disclosure might come up - with friends, family, new partners, school, work and health workers. It also talks about when you do and don't have to disclose and how to protect your rights and your privacy. Includes tips and personal stories.
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Tips for telling others
How do you prepare to tell others about your bleeding disorder? This section gives tips on how to get ready. It looks at why you might tell some people and why you might wait to tell others.
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Telling friends and family
This section deals with the issues in telling friends and family about your bleeding disorder. How will they react? What if family members have haemophilia, VWD or a rare clotting factor deficiency? What if they need to be tested too? It includes personal stories.
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When and how to talk to your daughter about her bleeding disorder can be a common question for parents. Might she carry the gene? Does she need to have testing? What is a good time? How do you have the conversation? This section covers these sensitive issues and includes experiences and tips from parents.
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Telling a new partner
How do you know if, when and how to tell a new partner about your bleeding disorder? This section is a frank discussion about these questions, with practical advice and suggestions from women with bleeding disorders from their experience.
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Telling your partner's family
Are you finding the thought of telling your partner's family challenging? This section considers the types of situations that might occur and the benefits of including your partner's family as well as ways of dealing with their reactions. There are practical tips and comments from women based on their experience.
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This section looks at the pros and cons of disclosing your bleeding disorder in your workplace - when are you required to disclose, why you might choose to tell your employer or others in your workplace, or not, and how to prepare. Includes personal stories and tips from women with bleeding disorders.
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Telling your daughter's school and carers
This section deals with the issues of telling your daughter's school and carers about her bleeding disorder, emergency plans and the pros and cons of her telling school friends. It covers child care, babysitters and sports coaches. It includes tips from parents.
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Telling health workers
Bleeding disorders are rare. What should you tell the health workers who provide your care about your bleeding disorder - your GP, surgeon, dentist, other specialists, nurses, physiotherapists, naturopath and other health care practitioners? This section outlines some strategies and tips.
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What does the law say about disclosure?
When are you required to disclose your bleeding disorder? This section covers the situations where you might be required to disclose a health condition if asked, including some employers, insurance, superannuation and when travelling.
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This section explains where to access more information. It also gives the references and contributors to the booklet.
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November 2018 edition
Date last reviewed: 5 December 2018